Skip to main content

ME with M.E.






... Sometimes ... well, most times ...





My brain is working on hyperdrive. I never stop thinking about all sort of things, not worrying, thinking. I could be trying to remember what we have in the freezer. How am I going to pay the bills? Is this task or that task going to get done? Do people like me? I am going to concentrate on that idiot driving in front of me, watch my speed, keep my distance, time my route, get there on time, park here or ... maybe there. When I get there I am going to, several different options, think on that. My knees really hurt, my vision is blurred again, my eye feels like sandpaper is rubbing on the inside, my hearing aid is whistling, that's really annoying and, I can't hear the music either. Memo to self, change playlist, add this, take away that.





That's the first few minutes of just a single journey ...





Every day I get all that going on, all the time, every waking moment of every day all at the same time as my body is telling me it's going into shut down mode. I am too tired, I've not had enough sleep, the more I think the more I am going to feel crap. By 3pm I feel how I used to feel at 3am. Sleep only takes those feelings away, it turns off my complaining mind and body and kills some time. Then, I wake up and it all starts again.





Pain? Discomfort?





For sure, I've what is referred to as 'my allergies'. It's a cover for what the real issue is. I have allergic rhinitis, this means a great deal of artificial chemicals, even if I don't knowingly smell them, make me feel ill ranging from sneezing to flu like symptoms. Yeah, that sucks. I got a condition called 'Uticaria' ... yeah, WTF right? It means my skin is stupid sensitive. Without a lot of meds I look like a mild burn victim or a someone who does repeated suicide attempts with a razor blade. Any pressure anywhere on my skin makes it crazy itchy. It lumps up, goes bright red and can last for hours, I mean, any pressure, anywhere. Not too many details but there is no underwear which stops one part of my anatomy feeling pressure from another and when 'down there' has an itch like no other itch, it's hell to ignore it. Arthritis in my knees, yeah, that sucks too. I got pains in my left arm now too, you know, just in case I was feeling like I was missing out!





So, what do I do?





Fight on,.Hey, you think I have choices here? No, this is my life! Barely any of these are visible conditions, many on their own are horrible, together, they're unbearable at times but, even those who know forget. When I say I am feeling whacked, that's me saying, no, not just now, I really can't. If I say 'OK' that means, sure, I'll feel like shit but, either, I need the money or, you're worth what I am having to go through. So, I work through because, that really is the only option isn't it?





Does anyone care?





Sometimes


Comments

Popular posts from this blog

Budget Day

So, we have the ‘Let’s buy a whole host of gullible voters day’ with George Osborne. No doubt we’ll be told how employment is rising, how the deficit is falling, how we’re all so much better off now than we were (compared to what?). We’ll be told that there are still tough times ahead but that only a Conservative government can steer us through them. It will be pointed out how inflation remains low, how not raising duty on fuel has helped everyone as is seen by the current lower prices at the pumps (it’s going up again George). In short, I should listen to this budget later and decide to vote Conservative in May but, I won’t. Labour certainly did nothing to avoid the mess the country got in but they didn’t cause it. They made the mistake of trying to be too conservative, allowing high finance the freedom to cause a catastrophic cock up for which they took zero responsibility. They made the mistake of allowing Gordon Brown to take the job of Prime Minister, one for which he is totally...

The soundtrack of my life

Oh dear

The good news is that it could possibly be Jermaine will be moved into his lovely new flat within 6 weeks. Matt is another story. His apology earlier was rather pathetic. He's still not really said sorry to either Daisy or Deej and, indeed, seems to think saying sorry to anyone is more important than being with his mates. He has a set of rules now, in writing and he's been told that if he deviates from it just once he best have somewhere else to live. We shall see. I don't hold out much hope but there is still a little inside of me, I need to believe there is good in him ... for now. Car - still not sold Looked at Nick's new place the other day. It's small but not so much as I feared it may be and could be made to look real nice with a little effort and thought. I know how I'd do it but it's up to Nick how he does it and I am looking forward to seeing the end result. Loads of work still to do at Robin's of course but at least he is up and running again o...