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Showing posts from January, 2009

'Normal'

Is what most people are and I enjoy choosing not to be. I am feeing better, illness still in e background, aches and pains but OK. The other day both Deej and me slipped on e mud outside Robin's. that was one of those really funny moments that happen to other people. Andy now officially lives here Once again I have more people than I have car space!

'Normal'

Is what most people are and I enjoy choosing not to be. I am feeing better, illness still in e background, aches and pains but OK. The other day both Deej and me slipped on e mud outside Robin's. that was one of those really funny moments that happen to other people. Andy now officially lives here Once again I have more people than I have car space!

Sharing Knowledge Course

I am on this course at the moment, indeed, it was the one I was also booked in for yesterday and which caused all the fuss from yesterday as well and is organised by 'Parents in Partnership'. The premise is that together, families of the disabled can bring about change both for themselves and for future generations. It is certainly a good way of thinking and will, I am certain, help achieve the aim. Annoyingly, borderline, frustratingly, there is where my positive viewpoint ends. My notes of the day are in the car so I am bound to leave something out here in my summary but I shall have made my point. Everything thus far has focused on the 'family'. Rarely has the word 'Carer' been used at all and I have read ahead to the further few sessions which are scheduled. The thrust seems to be for the 'family' to be the facilitators to bring about change for their disabled family member, to learn how to manipulate the system and ensure the full entitlement under

Sharing Knowledge Course

I am on this course at the moment, indeed, it was the one I was also booked in for yesterday and which caused all the fuss from yesterday as well and is organised by 'Parents in Partnership'. The premise is that together, families of the disabled can bring about change both for themselves and for future generations. It is certainly a good way of thinking and will, I am certain, help achieve the aim. Annoyingly, borderline, frustratingly, there is where my positive viewpoint ends. My notes of the day are in the car so I am bound to leave something out here in my summary but I shall have made my point. Everything thus far has focused on the 'family'. Rarely has the word 'Carer' been used at all and I have read ahead to the further few sessions which are scheduled. The thrust seems to be for the 'family' to be the facilitators to bring about change for their disabled family member, to learn how to manipulate the system and ensure the full entitlement under

I was (apparently) dead earlier!

It is strange how things work out, how one things leads to another and before we know it, we have a missing person report, people doing a search of the town, anxiety, panic and general confusion all whilst I was sitting oblivious. I made a mistake, I had this week arranged two training courses, the first was today and the other was a two day course starting (I thought) on Wednesday. Last week I mentioned to James where the course would be today, it was really only in St James around 1 1/2 miles from here. Thing is, the two day course actually started today and so they called home to ask where I was because they were expecting me. This set Deej off into a panic because clearly I never arrived where I was meant to this morning. People were called, Matt and Anne were brought around here, Daisy was dragged out of school and peeps were looking for me. My phone was getting 57 missed called and half a dozen voicemail messages and a few texts. This whilst I was busy on my course with the phone

I was (apparently) dead earlier!

It is strange how things work out, how one things leads to another and before we know it, we have a missing person report, people doing a search of the town, anxiety, panic and general confusion all whilst I was sitting oblivious. I made a mistake, I had this week arranged two training courses, the first was today and the other was a two day course starting (I thought) on Wednesday. Last week I mentioned to James where the course would be today, it was really only in St James around 1 1/2 miles from here. Thing is, the two day course actually started today and so they called home to ask where I was because they were expecting me. This set Deej off into a panic because clearly I never arrived where I was meant to this morning. People were called, Matt and Anne were brought around here, Daisy was dragged out of school and peeps were looking for me. My phone was getting 57 missed called and half a dozen voicemail messages and a few texts. This whilst I was busy on my course with the phone

Achoo

I got myself a cold which is annoying. I am not ill, just a little snotty, shivery and sore and all of those I can live with for a few days! I have been ill before now, I know what influenza is and this isn't, end of. Have been trying to plan a holiday this week. Decided against risking a foreign holiday seeing as we have no legal right to take James out of the country and are relying on the good will of his parents, it actually just isn't worth the risk that they may suddenly refuse. We then opted for a UK holiday on a broads boat using the holiday vouchers we are entitled to thanks to use shopping at Tesco. All was going well until the company said how much deposit they wanted, right now, on a debit card ... £700! As I said to them, this is a recession and larger holiday companies than their's have gone tits up, why would I want to risk £700? They have not replied as yet. Another familiar face from Star Trek universe died recently, these things happen. A sign we are all g

Achoo

I got myself a cold which is annoying. I am not ill, just a little snotty, shivery and sore and all of those I can live with for a few days! I have been ill before now, I know what influenza is and this isn't, end of. Have been trying to plan a holiday this week. Decided against risking a foreign holiday seeing as we have no legal right to take James out of the country and are relying on the good will of his parents, it actually just isn't worth the risk that they may suddenly refuse. We then opted for a UK holiday on a broads boat using the holiday vouchers we are entitled to thanks to use shopping at Tesco. All was going well until the company said how much deposit they wanted, right now, on a debit card ... £700! As I said to them, this is a recession and larger holiday companies than their's have gone tits up, why would I want to risk £700? They have not replied as yet. Another familiar face from Star Trek universe died recently, these things happen. A sign we are all g

Life is no longer about last week, this week and next week ........

There was a time when that was it, as complicated as it got and there were others to worry about periods beyond that. Indeed, to my young mind such moments in time beyond the here and now were incomprehensible. Someone beyond 25 was just so far removed from my understanding of life experiences as to be part of 'them', the 'everyone else' who wasn't young. Then I hit teens and boundaries became confused. In my mind I was still 7 dreaming of childish things and wanting to do nothing real and everything imagined. A part of me was feeling pulled into an adult world, one where I would not fit in and where I would be the outsider. The way others perceived me changed at this time to. I was expected to have an opinion on things I knew nothing about. I most certainly was, and this was clearly understood by the 'old' people, that I would contribute financially to the things to which I had grown accustomed to having others pay for. That little voice which wanted to be

Life is no longer about last week, this week and next week ........

There was a time when that was it, as complicated as it got and there were others to worry about periods beyond that. Indeed, to my young mind such moments in time beyond the here and now were incomprehensible. Someone beyond 25 was just so far removed from my understanding of life experiences as to be part of 'them', the 'everyone else' who wasn't young. Then I hit teens and boundaries became confused. In my mind I was still 7 dreaming of childish things and wanting to do nothing real and everything imagined. A part of me was feeling pulled into an adult world, one where I would not fit in and where I would be the outsider. The way others perceived me changed at this time to. I was expected to have an opinion on things I knew nothing about. I most certainly was, and this was clearly understood by the 'old' people, that I would contribute financially to the things to which I had grown accustomed to having others pay for. That little voice which wanted to be