Personal Message from Me

Some people believe I only post negative stuff so, this might come across as a little negative but, I want to explain something to you about me.

I am always tired. Sometimes I am so tired I feel like I've not slept in a week, other times I feel like you probably do when you go to bed, that end of the day feeling when you've done your stuff and are ready for sleep. Most times I wiggle between those feelings, normal bedtime tired is a good day.

So occasionally I might just not see enthusiastic about things. I want to be but I just don't have the umph for it.

As with all of us when we're tired, I might feel so tired I am just grumpy, that's because actually I am sleepy even if it seems dopey to be like that. There is nothing the doc can do about it either. Don't be bashful, if you see me like that, give me a hug and make me happy but, if you are wearing a strong scent, you might make me sneazy. This is how life is for me, heigh ho.

Even when I am mega tired my sense of humour is still there.

Whilst I am still awaiting an official diagnosis, all the other things which make us tired have been rules out so, it looks like I have M.E. (Myalgic Encephalomyelitis (M.E.) is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems. M.E. affects an estimated 250,000 people in the UK, and around 17 million people worldwide.)

I am not looking for sympathy, just understanding will do. My sister has the condition and, to be honest, is a fair amount of my inspiration to fight through it. If she can go to work each day, so can I. I do honestly wish I wasn't working for over 60 hours a week to get paid for just over 40 but that's currently the nature of the work I do. I honestly do not know how much longer I can cope with that pace but I will keep going as long as possible.

You know you don't look good when some of your clients offer you their medication to try and make you feel better! (No, I don't accept)

Comments

You Bloody Idiot

I had a really enjoyable time in Meltham with Stan and Pete, even that walk against the wind up the pub on Saturday evening in a blizzard was fun. On the way there I thought it’d be fun to take some pictures of the car in the snow. I had not realised just how windy it was, I seriously thought my door was stuck when I tried to open it but it was just being pressurised by the forces outside. I am lucky really the wind had not been behind me else the door would have been ripped off. On the way back on Sunday I paid a visit to Sue in Sheffield. I like Sue and she is a great conversationalist. The journey was not without incident as the satnav kept failing and crashing and just became useless. I eventually tracked the problem down to the loudspeaker connection for the mount and once I’d removed that it was stable and guided me well to Sue’s door. I am really happy to report that the steroid injection I had last week as helped ease my pain. I still have the pain but it is not restricting me ...

2 Weeks in

Amazing as it seems I am two weeks through my visit here. Some might be getting a little confused about why I am here. There is only one important reason and that is to be with Dennis. This isn’t a vacation to me, it’s just about having to travel to the Philippines because it is where Dennis happens to be. I’m still in very regular contact with home dealing with daily issues, the council, social services and so on. I am geographically away from it but technically still connected. Obviously it’s cool to wander into Manila and see the place, travel in a Jeepney and so on. Wandering around the malls is fun but it is who I am with rather than where I am that matters most to me. Highlights for me, apart from every second I spend with Dennis have to be meeting family and friends. Veronica and her family and Imee of course who has kept me entertained for hours with conversation about anything and everything Ireneo too tries real hard wit...

Not a good day

Today is a very emotional one for me. I have no idea why that would be the case but apparently it is. For a day that had nothing pre-arranged this one has turned out quite busy. First, I agreed to take Matt for breakfast though I wasn't really hungry. He was being quite argumentative in the morning about some thing or other, I don't recall what exactly but some matter of politics where he was going to argue the toss whilst knowing little or nothing about it. But, even so, I was quite upbeat as Jermaine had gone to school on time ... no, scrub that, i was upbeat until I yet again had to tell Zoey to get her arse out of her room, downstairs, do her chores and get to school, that is when this day started to go downward. I spent way too much money on a new doorbell, true, we needed one but not one that cost nearly £50! This too has not helped. I went to see a garage that can fit parking sensors to my car, all well and good but they needed me to supply paint to match the circles up ...

Steve from England

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